sinisterporpoise: (Default)
[personal profile] sinisterporpoise
 Spending time in fibro chat room can be depressing. Such forums often turn into a vehicle to air their complaints. However, it's also one of the few places you'll find other people who understand.  Last night, the topic turned, as it often does, to the financial struggles each of the regular chatters face. One person, who lives in Ireland, successfully got her social security equivalent. The people in the United States are still struggling with various elements of the disability system in the United States. Most of us are stuck in disability limbo. We are either married or have support from another source.  All of us would rather not have to live off of other people in this matter.  The system, in each of the states in question, seems to be the same one that exists in Indiana. The other two people I see regularly in the same situation cannot even get food stamps because their husbands make too much money.  (Now, everyone here, for some bizarre reason, has been diagnosed with fibromyalgia and some form of arthritis, even if the form is non-specific. I think it's just coincidence.)  Eventually, she expressed regret that there is no help for people like us.

And she's exactly right.  Even though she's in her late 50s and fairly close to collecting social security benefits anyway, the government expects her to prove that she cannot do the work that she used to do.  Her doctors told her to stop working, but the Social security administration is making her wait to even get the initial review. (The one that almost always says the doctors are wrong and someone either is not disabled or can do some other form of work.)  They sent her case into administrative review and she has to wait until December to even get that answer. My case went quickly.  I think they'll take more time with the reconsideration, as they're actually seeking out the records that exist under my dead name.

In the meantime, we exist in limbo. We live and keep roofs over our heads, but we enjoy this privilege only as long as others tolerate us. We're forced with living on the street or finding a new job to keep us afloat. As far as the government is concerned, getting a new job means we did not need to apply in the first place. If the same problem happens, the law does not consider that we were only delaying the inevitable to avoid the unpleasant circumstances of not having an income.

Part of me really wants to go back to Pennyslvania, but I'm stuck here for now, unless some other miracle occurs.

Date: 2015-07-18 12:37 am (UTC)
silk_dragon_zen: Rainbow Autistic Pride lemniscate over the black, grey, white, and purple stripes of the Asexuality Pride flag (Default)
From: [personal profile] silk_dragon_zen
Your friend is right: our system totally sucks! I wish we lived in a culture that valued people's wellbeing regardless of their ability to work.

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